Dystonia Awareness 2016

 / By Dr. Margaret Aranda /


 What is dystonia? Yvonne Maxwell knows all too well.

Dystonia is a neurologic movement disorder that is very debilitating or stool. It is Considered by many in social media to be in the classification of Invisible illnesses.  Listen to Yvonne Maxwell in the UK ... " In Jump For Dystonia " Challenge (See Video 1).  Excerpt from this most excellent and a Super,  under 4-min video:

"Definition of Paingry [cheeses * gree]:

(adj.) The description of the attitude of one living in chronic pain when they become snippy and short tempered. Usually brought about by any or all of thes of situations: pain medication has worn off, exhaustion, depression, frustration, fatigue, helplessness, and most of all love to pain. "


Dystonia Challenge by Yvonne Maxell: 

• Upload your photo (single or group shot) unto Official Facebook Page, Jump for Dystonia .
• Indicate your location, please

Dystonia Awareness 2016 Video: 

Dystonia Awareness Video 1 Video 2016. Dystonia syndrome is one that is frequently overlooked, misdiagnosed or not taken seriously. Let's the increased awareness!


Types of Dystonia:

Eyelid and a browser with blepharospasm are involved in muscles spasm.

Oromandibular Tongue and jaw (mouth) involvement (AKA cervical dystonia)

Laryngeal Airway he Spasmodic / vocal cord involvement: can lead to suffocation                                                          
Generalized Dystonia Abnormal movement (ie, spasmodic torticollis) of neck & shoulders                                                                    
Focal Hand Hand, or hand and forearm muscles with abnormal movement
                                                   Also known as 'writer's cramp'



Diagnosis by Rating Scale

The Movement Disorder Syndromes community owns a list of Scoring Scales to help differentiator fine lines of distinction between the dystonias and other muscle abnormality Diseases like the dyskinesias (kinesiology is the study of body movement; dyskinesia is 'dysfunction' s body movement). The list of MDS-Owned Rating Scales are seen in Image 2:

Image 1 of The Movement Disorder Scales. These are established and maintained in the strictest professional standards.


Treatment:

Talk to your health care provider to see if you need therapy, alternative medicine, optimization of nutrition, and anti-inflammatory diet, medication, Botox (R) Injections, an option of Deep Brain Stimulation (DBS) Surgery, it is much more. Certainly you need good sleep, day and night cycles, and some physical activity just to feel good. And a huge releases the chemical oxytocin that is also an anti-depressant. There's just so much you can do! So keep Believing!


Solutions

The power of a positive mind, mindfulness and self-advocacy are importante to gain a definitive diagnosis and treatment. I think it's great to find a social media Group That Assists you in your journey - and this is what the Stanford Medicine X program is all about: empowering Hasta. The great and fantastic thing to know is that Yvonne Maxwell's is empowering you!

Check Yvonne's recent  video  is empowering and accompanied by a song with the words thes:

"I can make it alone.

My sisters and me ...

I can make it alone.

My sisters and me ...

You ready to jump?

Get ready to jump.

Do not ever look back! "

Be Encouraged! 

~ ~ ~ ~ ~ ~ ~ ~ ~ ~ 

Resources

The Dystonia Society

International Parkinson and Movement Disorder Society 

International Parkinson and Movement Disorder Society Links to International Organizations

International Parkinson and Movement Disorder Society MDS Video Collection

International Parkinson and Movement Disorder Society News

Partner in Parkinson's Movement - Find a Movement Disorder Specialist 

Thank you for reading my writings! 

Dr Margaret Aranda is a Stanford Medical Alumni of Anesthesiology and Critical Care.

They and her daughter were in a tragic car accident 10 years ago. Her daughter is just fine!

Dr. Aranda suffered from traumatic brain injury, and vertebral artery dissection dysautonomi, winds Afflicted with Invisible illnesses. She won the 2011 Perseverance Award from the Invisible Disabilities Association, a hallmark of every Patient Advocacy. Since than, Dr. Aranda Continues to write and pursue every passion to bring all mental, physical and spiritual Efforts for Hasta together with 

Invisible illnesses.

Thank you.

#drmargaretar Zealand # yvonnemaxwell  #Invisibl to #Dysautonomi of the #TB 

#Mentalhealth #Spirituality #Mindfulness 

# Backpainday2016 #painmanagement #womenshealth

#agemanagement Medicine

Dystonia Awareness 2016

 / by Dr Margaret Aranda /


 What is dystonia? Yvonne Maxwell knows all too well.

Dystonia is a neurologic movement or gait disorder that is very debilitating. It is considered by many in social media to be in the classification of Invisible Illnesses. Listen to Yvonne Maxwell in the UK..."I Jump For Dystonia" Challenge (See Video 1). Excerpt from this most excellent and a Super, under-4-min video:

"Definition of Paingry: [peyn*gree]:

(adj.) The description of the attitude of one living in chronic pain when they become snippy and short tempered. Usually brought about by any or all of these situations: pain medication has worn off, exhaustion, depression, frustration, fatigue, helplessness, and most of all severe pain."


Dystonia Challenge by Yvonne Maxell: 

• Upload your photo (single or group shot) onto Official Facebook Page, Jump for Dystonia.
• Indicate your location, please

Dystonia Awareness 2016 Video: 

Video 1. Dystonia Awareness Video 2016. Dystonia is one syndrome that is frequently overlooked, misdiagnosed or not taken seriously. Let's increase awareness!


Types of Dystonia:

Blepharospasm                           Eyelid and brows are involved in muscles with spasm.

Oromandibular                           Tongue and jaw (mouth) involvement (AKA cervical dystonia)

Laryngeal or Spasmodic            Airway / vocal cord involvement: can lead to suffocation                                                          
Generalized Dystonia                Abnormal movement (i.e., spasmodic torticollis) of neck & shoulders                                                                    
Focal Hand                                Hand, or hand and forearm muscles with abnormal movement
                                                   Also known as 'writer's cramp'



Diagnosis by Rating Scale

The Movement Disorder Syndromes community owns a list of Scoring Scales to help differentiate fine lines of distinction between the dystonias and other muscle abnormality diseases like the dyskinesias (kinesiology is the study of body movement; dyskinesia is 'dysfunction' in body movement). The list of MDS-Owned Rating Scales are seen in Image 2:

Image 1. The Movement Disorder Scales. These are established and maintained in the strictest professional standards.


Treatment:

Talk to your health care provider to see if you need therapy, alternative medicine, optimization of nutrition, and anti-inflammatory diet, medication, Botox(R) Injections, an option of Deep Brain Stimulation (DBS) Surgery, or much more. Certainly you need good sleep, day and night cycles, and some physical activity just to feel good. And a hug releases the chemical oxytocin that is also an anti-depressant. There's just so much you can do! So keep Believing!


Solutions:

The power of a positive mind, mindfulness and self-advocacy are important to gain a diagnosis and definitive treatment. I think it's great to find a social media Group that assists you in your journey - and this is what the Stanford Medicine X program is all about: empowering patients. The great and fantastic thing to know is that Yvonne Maxwell's is empowering you!

Check Yvonne's recent video is empowering and accompanied by a song with these words:

"I can make it alone.

My sisters and me...

I can make it alone.

My sisters and me...

You ready to jump?

Get ready to jump.

Don't ever look back!"

Be Encouraged! 

~ ~ ~ ~ ~ ~ ~ ~ ~ ~ 

Resources

The Dystonia Society

International Parkinson and Movement Disorder Society 

International Parkinson and Movement Disorder Society Links to International Organizations

International Parkinson and Movement Disorder Society MDS Video Collection

International Parkinson and Movement Disorder Society News

Partner in Parkinson's Movement - Find a Movement Disorder Specialist 

Thank you for reading my writings! 

Dr Margaret Aranda is a Stanford Medical Alumni in Anesthesiology and Critical Care.

She and her daughter were in a tragic car accident 10 years ago. Her daughter is just fine!

Dr Aranda suffered traumatic brain injury, dysautonomia and vertebral artery dissection, becoming afflicted with Invisible Illnesses. She won the 2011 Perseverance Award from the Invisible Disabilities Association, a hallmark in her Patient Advocacy. Since then, Dr Aranda continues to write and pursue her passion to bring all mental, physical and spiritual efforts together for patients with 

Invisible Illnesses.

Thank you.

#DrMargaretAranda #YvonneMaxwell #Invisible #Dysautonomia #TBI 

#Mentalhealth #Spirituality #Mindfulness 

#BackPainDay2016 #PainManagement #WomensHealth

#AgeManagement Medicine

Chronic Illness Put me "Away" for a Time

by Dr. Margaret Aranda

I hadn't realized that it's been two years since I posted a blog here. But don't take that as laxity, disinterest, or laziness. For those of you who know me, I know that you know better than that. 

Since we have so many new viewers, Friends, Followers, and people in our Circles, let's do something different. Instead of telling you my story, my Personal Testimony of what landed me here on this page in the first place, let us have someone else tell the story for us: 

Video 1. Dr David Cannom and Dr Margaret Aranda.

Interviewed by Denise Dador of Channel 7 KABC News                 in Los Angeles, California, here is a testimony of "what                 happened." 

Really surprisingly to me, it is too hard for me to even watch this clip, even now, 7 years later. But it was just the beginning, just a blink of an eye, and POOF! I didn't even know it, but life as it had been was now to be forever changed. I would never be the same. 

I ended up being a rather highly intelligent MD, a USC medical student graduate, and a graduate of two medical programs at Stanford, both anesthesiology and critical care. My highest position was that of Interim Chief of Anesthesiology at the Philadelphia Veterans Hospital in Pennsylvania. It was a 'hard town,' and to me it was a City of "Unbrotherly" Love. Harsh and unforgiving, it actually prepared me for the 'rest' of my life. 

I'll open up a little more later on, but for now it is important to know that above all else, I always had a connection, a spiritual connection, with Jesus. Even in second grade, I accepted his death on the cross for my sins, and comprehended what he did in laying down his life. And I loved him for it. I just loved him so much. 

That love stayed with me all my life, even to this day. It gave me faith and perseverance, guidance and a Plan. It led me through dark days and nights, for over three years, of having my own iv going in through a PICC line that kept me alive by giving me maintenance fluid. And the ludicrous part was that it was my profession to watch those tear-shaped drops fall, one-by-one, into my patients, not me. 

So I sit here now, arriving at a place and a time when I am ready to share my journey through my own health. I was in the only medical school that had a mandatory Nutrition class in the country, Oral Roberts' University School of Medicine, before transferring out to USC. And I was always athletic, being on Swim Team since 5th grade, running cross-country, playing racquetball with men only (since my Dad taught me how to play, and playing with other girls was just not a competition), and learning how to throw a football with my Dad. He was my hero, indeed. I didn't realize how much of a hero he was to me, not until well after his death. Ah, but that story is also for another day, another time. Not now. 

I started cooking when I was 13 years of age, and made good food and extravagant desserts all my life, up until the car accident rendered me unable to walk or talk. Then my brain injury left me with no 'hunger' sensation, and I had to be reminded to eat. When I was finally well enough to be certified in Age Management Medicine, I changed everything. I became the book, that unwritten book, that I preached. And I've been on a diet of Immunonutrition ever since then, perhaps 3 years now. 

Do I think it has helped me? Well, I used to be hospitalized 1-2 times per month. Now, I haven't had a hospitalization in ?2 years. And I could go on, but I'm tired. I just want to introduce this concept to you: 

"Every bite of food that you eat either kills you or it makes you live longer."   ~  Margaret Aranda, MD, Ph.D. 

Stay tuned for more. And I did write an entire Chapter on Immunonutrition in my book on Women's Health, Archives of the Vagina: A Journey through Time. It's been out there for a year. You can find it here: 

www.drmargaretaranda.tateauthor.com/other-works 

Thank you. See you next time. I'm welcoming myself back, since there doesn't seem to be anyone to do so with or for me at the moment. I smile, because I'm tough. No worries.